Long term illness, late diagnosis, people don't read me accurately. In spite of diagnosises like lupus, multi organ illness, pre cancer, etc people act like I'm not the very truthful person I am and have been. After 6 years of bleeding, I finally got tested for uterine cancer and have pre cancer. It's complicated by my other conditions so I can't get doctors. Some doctors don't believe me or think I'm crazy and I'm not. I've suffered more than anyone knows. My medical care is often botched up due to sincere error or intentionally done actions from disbelief of my story. I haven't sent records many places and unsure where to aim for. People keep acting like I'm doing something else. Prior attempts to see counsellors or clergy were disasterous and miscommunication is common. I meet other health patients who got their screening tests late from skeptical doctors and wonder why some are so well recieved and other honest patients are brushed off or rejected by doctors or in social settingsNeed advice, support, decisions on illness, care, people not believing me.?
I am sorry you are having so much trouble with doctors. While I don't understand anything about the conditions your refer to, please get as many records together as you can and go to a community clinic to see a doctor.If that doesn't go well, to to a university health center. Then to the regular doctor I assume you have. If all else fails, go to a social service agency and ask them for help, or someone who can lead you through the system to successfully get the dianoses and treatments you need.
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